We are pleased to share these videos from our 2017 FSHD Family Day conference in Los Angeles, held on October 21, 2017. We are so grateful to Laurie Heyman and… Read More »
Los Angeles FSHD Family Day videos
Knowing others who share your diagnosis makes you happier
Findings from major study of long-term disability We at the FSH Society have long believed that helping individuals and families with FSHD meet one another is one of the most… Read More »
How the FSH Society drives FSHD therapy development
This infographic from our FY2017 Donor Report illustrates how the FSH Society is involved at every stage of the treatment development process. We invest strategically at key stages along the… Read More »
Has the Design for All moment arrived?
The movement for universal design–clothing, furniture, medical devices, housewares, and architecture that are accessible, beautiful, and nonstigmatizing–is gaining steam, enough to warrant an exhibition at the Cooper Hewitt Smithsonian Design… Read More »
FY2017 Donor Report documents a year of change and growth
Download the FY 2017 Donor Report here Amazing! That’s the word that comes to mind when I look back on 2017 and reflect on all that has been accomplished as… Read More »