We are sharing the following press release from Acceleron Pharma, Inc., regarding the progress of their Phase 2 clinical trial of ACE-083. The FSH Society collaborates with Acceleron to help… Read More »
Acceleron Announces Preliminary Results from Part 1 of the ACE-083 Phase 2 Trial in Patients with Facioscapulohumeral Dystrophy
Accessibility Hacks, mobility aids, and tips (Part 3 of 3)
More useful tips from Paul Shay of Groton, Massachusetts. For past postings see Accessiblity Hacks Part 1 and Part 2. Reacher-Grabbers. I have four of these―one for the garage (I’ve dropped… Read More »
FSH Society Talk Radio, On-air Support Group
Join us on Wednesday, December 27, at 9:00 pm EST / 8:00 pm CST for our live radio show. Tune in HERE. On this episode, the featured guest is you, the… Read More »
We bring people together to fight FSH muscular dystrophy
The FSH Society connects patients like Katie Ruekert to a community of support so no one has to face this disease alone. We also work closely with thought leaders like… Read More »
Video: Molecular therapy for FSH muscular dytrophy
In this FSH Society webinar, Scott Q. Harper, PhD, of Nationwide Children’s Research Institute describes FSHD genetics and explains how gene and molecular therapy could be used to block the… Read More »