You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge… Read More »
Blazing a Trail to the Future
An undeniable sense of optimism
In this interview, Dr. Jeffery Statland of the University of Kansas Medical Center explains how FSH Society funding seeded the creation of the seven-site Clinical Trial Research Network (CTRN), which… Read More »
Rediscovering the Freedom of Bicycling
by MICHELLE CHAUVIN Sterling Heights, Michigan Bike riding is something I’ve always enjoyed. After my husband and I were married, we would drag our bikes down the stairs from our… Read More »
A comedian’s worst nightmare
Watch what happens with this famous Dutch comedian performs before an audience of people with facioscapulohumeral muscular dystrophy. Did you notice confidence and determination of these patients and families, boldly… Read More »
Double your impact this #GivingTuesday
We’re excited to announce that your donation on Tuesday, November 28, will be eligible for matching gifts! Here’s how: Donate through Facebook. On #GivingTuesday, Facebook and The Bill & Melinda… Read More »