Thanks to our friend and fellow FSHD advocate in China, Ning Baisheng, our “About FSHD” brochure has been translated and adapted for readers in China. Baisheng says patients in China… Read More »
“About FSHD” brochure is now available in Chinese!
Relive Team FSHD Cycling’s Race Across America!
Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of tissues… Read More »
FSHD Canada awards $20K for FSH Society research grant
The FSH Society is pleased to announce that it has received a grant of $20,000 from the FSHD Canada Foundation in support of an exciting, treatment-focused project, “Developing LNA-based therapy… Read More »
Donate your used car or truck and get a tax deduction!
Wondering what to do with your used car or truck? Donating your old vehicle to the FSH Society, is convenient, easy, and may qualify you for a tax deduction. And… Read More »
Forget Me Knot Fundraiser, Extended until September 15th!!
UPDATED! Thank you to everyone who donated to Michelle’s Forget Me Knot fundraising campaign. We didn’t quite reach our $50,000 goal, so Michelle has extended the deadline to donate to September 15th!!… Read More »