We are proud and honored to announce that our PR/marketing partner SHIFT Communications earned a Publicity Club of New England Bell Ringer Award! A Silver Bell was awarded for… Read More »
SHIFT Communications wins PCNE Bell Ringer Award for American Ninja Warrior Campaign
Muscle Activation Exercises
Lynnette Rasmussen OTRL provides detailed, hands-on demonstrations of a variety of gentle exercises targeting specific muscles. Developed in collaboration with an FSH muscular dystrophy patient, these exercises demonstrate principles that… Read More »
Check out our Orange Slice Selfies Video!
Check out our brand-new Orange Slice Selfies video to find out how you can join in celebrating World FSHD Day coming up on June 20th! With the help of great… Read More »
FSH Society Talk Radio – A chat with Chris Carrino, voice of the Brooklyn Nets
Wednesday, May 31, 2017. 10:00 pm EST / 9:00 pm CST. LISTEN HERE! Chris is the voice of the NBA’s Brooklyn Nets and as founder of the Chris Carrino Foundation,… Read More »
Make an Impact This World FSHD Day With Our Orange Slice Selfie Campaign
The FSH Society is excited to celebrate the Second Annual World FSHD Day and join the global effort to raise awareness to FSHD this June 20th. To build upon last… Read More »