Corporate Matching Gifts: Does Your Company Match Your Donation? Did you know many companies offer a matching gift program to encourage philanthropy among their employees? And that some companies will even… Read More »
Double Your Donation… Easily and Free!
FSH Society Awards $541,133 in Funding for FSH Muscular Dystrophy Research
Boston-based Non-profit Awards New Grants to Facilitate Search for a Cure BOSTON – April 5, 2017 – Today the FSH Society, a world leader in combating facioscapulohumeral muscular dystrophy (FSHD),… Read More »
Update on Clinical Trial A083-02: a Phase 2 Clinical Study of ACE-083 in FSHD
The FSH Society has a long history of partnering with biotech and pharmaceutical companies to facilitate recruitment of patients and families for focus groups, provide patient input to clinical outcome… Read More »
FSH Society Talk Radio launches first episode
We have launched a new service for our members, an internet radio show that will feature guest interviews and live on-air Q&A with our listeners. Hosted by Tim Hollenback, the… Read More »
FSHD patient survey results presented at MDA Conference
At the Muscular Dystrophy Association’s biennial scientific conference, held in Washington, DC, on March 19-22, 2017, researchers from Acceleron Pharma presented a poster about the most prominent symptoms and daily… Read More »