Cambridge, Massachusetts-based Acceleron Pharma, Inc., is now recruiting adults with FSH muscular dystrophy for a Phase 2 clinical trial of ACE-083 at sites in Kansas City, KS, and Rochester, NY,… Read More »
Acceleron adds 2 new sites for ACE-083 clinical trial
Ask the Physical Therapist: Myofascial Release and Paraspinal Exercises
The following is a partial transcript of a question-and-answer session, conducted over the FSH Society’s Facebook page, with Julie Hershberg, PT, DPT, NCS. Hershberg is a physical therapist who is… Read More »
Ask the Physical Therapist: Asymmetrical Wasting and Braces
The following is part of the transcript of a question-and-answer session, conducted over the FSH Society’s Facebook page, with Julie Hershberg, PT, DPT, NCS. Hershberg is a physical therapist who… Read More »
Download our medical alert card
If you ever find yourself in the emergency room, you want your medical care team to know about your status as a person with FSH muscular dystrophy. Our medical alert card, which… Read More »
Meet three remarkable individuals with FSH muscular dystrophy
Meet Steven Blier, Sarah Geissler, and Chris Stenmon, three remarkable individuals with FSH muscular dystrophy who spoke about their dreams and personal challenges at the 2016 CureFSHD Gala. Interviewed by… Read More »