by Amy Tesolin-Gee, Midland, Michigan Several FSHD patients, family members, and FSHD-experienced clinicians came together in Ann Arbor on June 4, 2016, for an educational meeting including lots of helpful, informal… Read More »
Waking up your muscles with Lynnette Rasmussen
FSH Watch Issue 3 is out!
We are excited to announce the arrival of our newest edition of the FSH Watch. This Watch not only shares patient stories and information on coping with FSHD, but also… Read More »
Looking Back on A Year Full of Strength
As we look back on the incredible year we have had, we want to acknowledge those who have shared their inspirational stories, strength and commitment to continue to do the… Read More »
Participate in our survey on the impact of FSH muscular dystrophy
We are excited to share with you a survey containing questions to help researchers better understand the impact of FSHD on patients and caregivers. The survey was developed collaboratively by… Read More »
2015-2016YTD Donor impact report. 25 years of transformation
Our 2015-2016YTD Donor Impact Report is out! We urge you to read it to appreciate the incredible impact your support has had, and will continue to have into the future…. Read More »