The FSH Society Board welcomes two new members, who were elected at the May 2016 Board meeting. They bring considerable business, financial, governance, and marketing knowledge with them, along with… Read More »
Meet our newest Board of Directors members
Cyndie Abelman Memorial Fundraiser
A message from Steve Abelman: It is hard to believe that nearly two years have gone by since Cyndie Abelman’s passing. Not a day goes by where her two beautiful… Read More »
Chipotle Fundraiser in Castle Rock, CO
Make dinner a selfless act by joining us for a fundraiser to support the Walk & Roll to Cure FSHD! Just come into the Chipotle at 5642 Allen Way, Space 104 in Castle Rock,… Read More »
Video diary: Ryan Levinson
FSH Society Ambassador Ryan Levinson just transmitted this video from his berth in Fakarava, a tiny atoll in the Tuamotu chain of French Polynesia! He shares how he has adapted his movements to… Read More »
Q & A with Dr. Rabi Tawil, Part 1
Here are selected questions from an FSH Society webinar held on October 1, 2015, with Rabi Tawil, MD, co-director of the MDA Neuromuscular Disease Clinic at the University of Rochester,… Read More »