The FSH Society has awarded $598,242 in research funds from its August 2015 grant submission cycle. Details of the funded projects can be viewed on this page. These proposals received highest marks from… Read More »
FSH Society newly awarded grants
Ultragenyx Pharmaceutical to sponsor FSHD drug development project
Ultragenyx Pharmaceutical Inc., a biopharmaceutical company focused on the development of novel products for rare and ultra-rare diseases, and Saint Louis University’s (SLU) Center for World Health and Medicine, announced that they… Read More »
FSH Society elects new Board members
The FSH Society Board of Directors has elected two new members at its February 2016 meeting. The newly elected directors, George Pollock Jr and Neil Solomon, MD, bring extensive experience… Read More »
Staples Grant to Support Scholarship
Did you hear? The FSH Society has been awarded a grant by Staples Foundation. We plan to use the donation to support public awareness and youth education about FSHD, such… Read More »
A portrait of Pierre, who lives with FSH muscular dystrophy
Check out this wonderful short documentary about Pierre, a 40-year-old who has shared this intimate view of what it is like to live with facioscapulohumeral muscular dystrophy.