Check out this wonderful short documentary about Pierre, a 40-year-old who has shared this intimate view of what it is like to live with facioscapulohumeral muscular dystrophy.
A portrait of Pierre, who lives with FSH muscular dystrophy
In Celebration of 25 Years: Thank You
This year, we are proud to say that the FSH Society is celebrating its 25th anniversary. For a quarter century, we have had the honor and the privilege of helping… Read More »
Ask the Physical Therapist: Shoulder blades and high arches
From the FSH Society’s Facebook Q&A session with Julie Hershberg, PT, DPT, NCS. Hershberg is a Board Certified Neurologic Specialist. She practices at [re+active] physical therapy & wellness and is an instructor in Doctor… Read More »
FSH Society attending FSH Friends research summit
FSH Society executive director June Kinoshita will be attending the 2016 FSH Friends Research Summit in Portland, Oregon, this February 29-March 1, timed to mark Rare Disease Day. The summit… Read More »
Thank you for helping us exceed our year-end challenge!
At the end of 2015, our Board of Directors pledged gifts totaling $384,805 and challenged FSH Society members and friends to match it. We’re delighted to announce that not only… Read More »