According to a Boston Business Journal story, Cambridge, Massachusetts-based biotech Acceleron Pharma has plans to test its ACE-083 compound in facioscapulohumeral muscular dystrophy patients in a phase 2 clinical trial later… Read More »
Acceleron plans to launch Phase 2 FSHD trial this year
Los Angeles Abilities Expo, Calling All Artists!
FSH Society Board member Amy Bekier is organizing an FSH Society booth at the 2016 Los Angeles Abilities Expo (February 5-7) on the theme of artists living with FSHD. Creative artists… Read More »
Anson Calder supports FSH muscular dystrophy research
Give the gift that gives back! Anson Calder’s super slim, elegant wallet is the perfect present to put under the tree this year. “Your search for the perfect wallet is… Read More »
Hot off the press! FSH Watch Fall 2015 issue
This October we had our first-ever gala in Los Angeles, an incredibly fun Halloween costume ball aptly named “A Ghostly Gala to Vanish FSHD.” There, June spoke of the importance… Read More »
What FSH Muscular Dystrophy Has Given Me
Learn, let go, and find beauty in new places By Meredith L. Huml, Raleigh, North Carolina As a muscular dystrophy sufferer—I was diagnosed with FSHD at Duke University’s Muscular Dystrophy… Read More »