Insights on symptoms, biology, and quality of life By Yi-Wen Chen, PhD and Jean Mah, MD While most people with FSHD develop muscle weakness during late teen years or adulthood,… Read More »
Update on Early-Onset FSH Muscular Dystrophy Study
Biology 101 for understanding the CRISPR research
Peter Jones, PhD, and Charis Himeda, PhD, found themselves unexpectedly in the media spotlight last week after publication of their paper on the application of CRISPR technology in FSHD cells. In… Read More »
2015 Year-end challenge: Lighting the way to a cure
Our Board of Directors has pledged a record-setting $384,805 this year for our year-end campaign and challenges you to help match it. Why should you make a gift this year?… Read More »
In Sacramento, orthotics and scooters
On November 4th, fourteen members of the Sacramento FSH Society Support Group met at Louie’s restaurant for lively discussion, fun and good Chinese food. We were joined by John Dorsett, M.D. of… Read More »
#GivingTuesday matching gift challenge!
This Tuesday, December 1st, your gift will be matched dollar for dollar by a generous benefactor, up to $1,500! Giving Tuesday is observed annually on the Tuesday following Thanksgiving and… Read More »