We have good news and bad. Our Ghostly Gala celebrity host, Max Adler, just announced that he has been cast in the next Clint Eastwood movie. According to the Hollywood… Read More »
Comedian Wendy Liebman to host the Ghostly Gala
October member meetings
Tuesday, October 20, 2015 Denver 7:00pm-9:00pm. A gathering to socialize, exchange knowledge and advocate for FSHD. This meeting will explore ideas for a fundraising event! More info here. Saturday, October… Read More »
Next New England member meeting November 8
Our next FSH Society member meetings for the New England region will be on Sunday, November 8, noon to 3PM. Kirsten Neves will be hosting us in the tasting room… Read More »
New brochure on facioscapulohumeral muscular dystrophy
We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide… Read More »
FSH Society seeks Board candidates
The FSH Society is seeking qualified candidates for its Board of Directors. The Society’s mission is to deliver treatments and a cure for FSHD by connecting all the stakeholders and promoting research… Read More »