Even without treatment, a diagnosis is therapeutic By Asifa Lalji (from her article in the FSH Watch Newsletter Spring/Summer 2015) When the Canadian provincial government of British Columbia decided it… Read More »
Why seek genetic testing for Facioscapulohumeral muscular dystrophy?
Doug & Gracie NYC to DC needs your support!
This September 6, Doug Craig, a retired scientist who has lived with FSHD since his teenage years, will be embarking on a 290-mile journey from New York City’s Columbus Circle… Read More »
Report from Sacramento
By Bill Lewis III, MD A new support group met for the first time in Sacramento, CA on August 19th at a centrally located restaurant. We had 10 attendees from the… Read More »
2015 Spring/Summer issue of FSH Watch is out!
The latest issue of our FSH Watch newsletter has just come out. You can download it here. Highlights include: The first evidence-based FSHD care guideline has been published. What is it? How… Read More »
Become involved with our FSHD Be Strong Campaign!
Want to see a shirt that will knock your socks off? In addition to style, for every shirt or sweatshirt sold, 100% of the profits goes back to the FSH… Read More »