We are west coast heavy this month. Our meetings are steered by FSH Society volunteers and designed to serve the interests of individuals living with FSHD, their families, and friends. Our goal… Read More »
August Member Meetings!
Kristin Duquette speaks about the 25th Anniversary of the Americans with Disabilities Act with Huffington Post Live
The Huffington Post hosted a live discussion around the 25th anniversary of the Americans With Disabilities Act. Our very own Kristin Duquette, a decorated athlete and activist, participated in the… Read More »
Hot off the press: FSHD care guideline
Evidence-based, if incomplete, new guideline is a major step forward. All too often, FSHD patients encounter doctors whose knowledge of the disease seems to be gleaned from dusty textbooks. A… Read More »
First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology
From PRWeb Contact Information: Rosie Hale 617-779-1893 FSHSociety@shiftcomm.com Guideline is a landmark step forward for the diagnosis; comes as a result of FSH Society’s advocacy efforts over the past 20… Read More »
FSH Society sets all-time record in funding research
The FSH Society announced a new round of grant award recipients bringing the Society’s total grant awards to over $890,000 in 2015. This round of award winners were among a competitive… Read More »