We have some good news to share. Last night members of SHIFT Communications, our pro bono PR/Marketing partner, attended the annual Publicity Club of New England’s Bell Ringer awards. The Publicity… Read More »
#FSHDSelfies campaign wins award
Lake Party to raise funds for FSH Society
Join FSH Society Board member Michelle Mackay and her husband David on July 11 for their annual Lake Party fundraiser at their home in Hickory Corners, Michigan. Michelle is one of the… Read More »
Honorary Board’s Kelli O’Hara nabs Tony!
Twitter erupted in a frenzy of virtual applause and “it’s about time” tweets when Kelli O’Hara won the 2015 Tony Award for Best Actress in a Musical last night. It… Read More »
Clinical Trial Readiness for Facioscapulohumeral muscular dystrophy
The FSH Society is co-funding the second FSHD Trial Preparedness Workshop. The Workshop, held from May 29-30, 2015, at the University of Rochester Medical Center in Rochester, New York, will convene… Read More »
Race for a cure!
Calling all racing fans! The FSH Society is headed for the big screen at the Indy 500 this weekend where we will launch a gift matching campaign. This Sunday at… Read More »