Many researchers have long suspected that the number of individuals with FSHD is significantly greater than has been reported. A new study from the Netherlands bears out this suspicion and… Read More »
FSHD is one of the most prevalent neuromuscular disorders
Interview with Daniel Perez
Living with and fighting against a deadly disease By Jessica Bartlett, Boston Business JournalĀ Dan Perez, President and CEO of the FSH Society, has testified nearly 40 times before Congressional… Read More »
Senator Elizabeth Warren addresses FSH Society meeting
FSHD Connect Unites Patients, Doctors and Researchers to Explore New Insights on Rare Disease Boston, MA (August 18, 2014) (PRWEB) August 18, 2014 The FSH Society, the Massachusetts-based charitable non-profit… Read More »
2014 FSHD Connect attracts over 200 people
2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was heldĀ in Boston on August 16-17th. Over 200 people attended, the largest such gathering to… Read More »
FSH Society’s International Meeting to Bring Together Patients & Researchers From Around the World to Explore New Insights on Rare Disease
The FSH Society, the Massachusetts-based charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Biennial International Network Meeting. The meeting will… Read More »