You can read and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with… Read More »
FSH Watch Spring 2014
Michelle Mackay and Retired Kellogg’s CEO David Mackay Host Second Annual FSH Society Fundraiser
From PRWeb Couple Builds upon Success of Last Year’s Event to Raise Awareness of Little-Known Disease at Lakeside Michigan Event Gull Lake, Michigan – May 25, 2014 – After last… Read More »
Welcome to our Celebrity Board
FSH Society Announces Honorary Board Committed to Raising FSHD Awareness Distinguished celebrities help increase visibility of rare incurable disease (From PRWeb) The FSH Society, the Massachusetts-based non-profit organization that has transformed… Read More »
FSH Society Announces Honorary Board Committed to Raising FSHD Awareness
The FSH Society, the Massachusetts-based non-profit organization that has transformed the science of the rare incurable disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Honorary Board. The board of fourteen… Read More »
Fundraising Webinar: Organizing a Benefit Concert
From our series of “Fundraising Masterclasses,” this webinar features Beth Johnston and Judith Seslowe who have co-chaired the our New York City benefit concert. They share how a backyard picnic… Read More »