Kyle Bennett is a 23 year old college student in Sacramento, California, who has FSH muscular dystrophy. An outstanding baseball player when he was younger, he had to give that up. And… Read More »
Meet Kyle Bennett, snowboarder
A recap of 2014 research highlights
Check out our press release “A Look Back: FSHD Research Advances in 2014,” which summarizes some important advances in our understanding of medical as well as fundamental scientific issues. These include… Read More »
Welcome to our new website!
We hope you like it. We have migrated and updated the valuable content from our previous website and added new features, such as a blog (like this post, always visible on… Read More »
The Truth Hurts, but I Can Bear It
The following essay was written by Zabrisa, a 16 year old with FSHD who lives in Arizona. “Are you strong enough? Are you really sure you can do this, you’re… Read More »
Good Morning America spotlights FSHD
Carlos Romero, an FSH Society member, was featured today on Good Morning America in connection with People magazine’s annual “Half their Size” issue, which is out on news stands today. While… Read More »