The 2014 FSH Society FSHD International Research Consortium workshop is being held as an ancillary meeting on Friday and Saturday, October 17-18, 2014, prior to the opening of the American Society for Human… Read More »
FSHD researchers gather in San Diego
FSHD is one of the most prevalent neuromuscular disorders
Many researchers have long suspected that the number of individuals with FSHD is significantly greater than has been reported. A new study from the Netherlands bears out this suspicion and… Read More »
Interview with Daniel Perez
Living with and fighting against a deadly disease By Jessica Bartlett, Boston Business Journal Dan Perez, President and CEO of the FSH Society, has testified nearly 40 times before Congressional… Read More »
Senator Elizabeth Warren addresses FSH Society meeting
FSHD Connect Unites Patients, Doctors and Researchers to Explore New Insights on Rare Disease Boston, MA (August 18, 2014) (PRWEB) August 18, 2014 The FSH Society, the Massachusetts-based charitable non-profit… Read More »
2014 FSHD Connect attracts over 200 people
2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to… Read More »