We need YOU – to write to your senators by Anna Gilmore, FSHD Society Last year was an exciting one for our community as we launched our first FSHD Day… Read More »
Aiming to access fresh funding for FSHD research
Using HIPAA to Make Sure You Are Treatment Ready
by William Saraille, Washington DC We hope we that in the not-too-distant future, treatments for FSHD will be approved by the Food and Drug Administration. But when that time comes,… Read More »
The Care Connector
Find resources near you by Anna Gilmore, FSHD Society Among the most frustrating interactions you can have with a new healthcare provider is realizing that they don’t know anything about… Read More »
Springbok Analytics Leads MRI Innovations in MOVE Pediatric FSHD Clinical Study
Springbok Analytics Leads MRI Innovations in Multi-Site Pediatric FSHD Clinical Study AI-Driven Muscle Analysis to Support MOVE Peds Study, Advancing Trial Readiness for Pediatric FSHD CHARLOTTESVILLE, Va., March 17, 2025… Read More »
Anesthesia in surgery for people with FSHD
This webinar discusses anesthetic considerations for patients with FSHD, emphasizing that each anesthetic plan is tailored to the individual patient and procedure. The speaker is Bruna Castro de Oliveira, a… Read More »