From Fulcrum Therapeutics’ press release Reachable Workspace (RWS) primary endpoint based on discussions with FDA and EU regulatory agencies Trial expected to begin in 2Q 2022 Potential first-to-market therapy for… Read More »
Fulcrum announces Phase 3 trial of losmapimod
Let’s start a movement!
How I got my local hospital to make accommodations for me by Diane Pappas, Gloucester, Massachusetts You don’t realize there is a problem with something until you experience it yourself. … Read More »
Women on Wellness – Activities of daily living
by Ranae Beeker, RN The Women on Wellness (WOW) group, a group of women who personally share the challenges of FSHD meets on the first Wednesday of the month (2P… Read More »
Shoulder dyskinesia in FSHD
Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result… Read More »
Listening to my dreams
by Haviva Ner-David Part III of excerpts from Rabbi Ner-David’s book, Dreaming Against the Current I AM A tour guide for a large synagogue group visiting Israel, getting on and… Read More »