by Lawrence J. Hayward, MD PhD, University of Massachusetts Medical School To develop robust therapies for FSHD, we need a better understanding of the sequence of events occurring at the… Read More »
Dynamics of DUX4 downstream networks
Calling all parents of early-onset FSHD children
The FSHD Society is launching a new chapter for families with early-onset FSHD (also called infantile FSHD). Led by Ally Roets, the chapter will meet virtually to serve people everywhere… Read More »
FDA grants fast track designation to Losmapimod
From Global Newswire. Read full release. CAMBRIDGE, Mass., May 12, 2021 (GLOBE NEWSWIRE) — Fulcrum Therapeutics, Inc. (Nasdaq: FULC), a clinical-stage biopharmaceutical company focused on improving the lives of patients with genetically… Read More »
Tips for FSHD Travelers
by Rich Holmes, Sandwich, Massachusetts With growing numbers of people getting vaccinated against COVID-19, many are looking forward to being able to travel again. But traveling with a disability imposes… Read More »
A researcher’s journey into FSHD
In this FSHD University Webinar from April 15, 2021, Angela Lek, PhD, a research scientist at Yale University School of Medicine, speaks about how her husband’s diagnosis with limb-girdle… Read More »