In our webinar on “Accelerating Therapy Development: The Patient Community Role,” Molly White, Vice President, Medical Communications & Advocacy at Dyne Therapeutics, discusses the many ways in which your efforts,… Read More »
The community’s role in accelerating therapies
Sole Searching
Finding shoes to fit your needs AND your personality by Beth Deloria, Allard (content sponsor) Did you know that shoes can be used to guess someone’s traits or characteristics? A… Read More »
A success for the virtual 2020 International Research Congress
by Jamshid Arjomand, PhD, Chief Science Officer, FSHD Society Our original plan for 2020 was to host the International Research Congress (IRC) in Washington, DC, in proximity to the FDA… Read More »
Pandemics past and a diagnosis long delayed
by Bill Mirza, Palm Harbor, Florida I am an 86 year old white male, living with FSHD for the past 68 years. I wanted to share my life’s FSHD experiences… Read More »
A giant of FSHD research shares his “regrets”
In his keynote lecture from this year’s International Research Congress on FSHD, held virtually on June 25-26, George Padberg, MD, regarded as the father of modern FSHD research, shared observations… Read More »