by Jamshid Arjomand, PhD, Chief Science Officer, FSHD Society Our original plan for 2020 was to host the International Research Congress (IRC) in Washington, DC, in proximity to the FDA… Read More »
A success for the virtual 2020 International Research Congress
Pandemics past and a diagnosis long delayed
by Bill Mirza, Palm Harbor, Florida I am an 86 year old white male, living with FSHD for the past 68 years. I wanted to share my life’s FSHD experiences… Read More »
A giant of FSHD research shares his “regrets”
In his keynote lecture from this year’s International Research Congress on FSHD, held virtually on June 25-26, George Padberg, MD, regarded as the father of modern FSHD research, shared observations… Read More »
Staying Active While at Home
In this recorded webinar, Julie Hershberg, PT, DPT, NCS, presents evidence-based benefits or physical therapy and exercise for patients with facioscapulohumeral muscular dystrophy (FSHD). Dr. Hershberg is a neurologic… Read More »
UCLA Health – Southern California’s Frontlines of FSHD Research
Nestled into a basement in an outpatient building at UCLA Health’s Westwood hospitals is UCLA Neurology, home to ground-breaking FSHD Research. UCLA Health already ranks as the #1 hospital… Read More »