by Heather Green There are moments in every life that are defining. We can live weeks, months, and years sometimes without having anything memorable happen, then in a flash, our… Read More »
The journey of a forensic psychologist
The disappearing bomb
How DUX4 could cause FSHD without actually being there BY AMANDA HILL, HIGHLANDS RANCH, COLORADO In the FSHD research field, there is an emerging idea that the damage caused by… Read More »
USA Today features Carden Wyckoff
Those of us who spend (too much) time on Facebook may recall the envy-inducing photos posted last summer by Carden Wyckoff as she traveled solo with her wheelchair across Europe…. Read More »
A new way to detect DUX4
by Gholamhossein Amini Chermahini, MD, Columbus, Ohio Editor’s Note: Dr. Amini Chermahini and his colleagues were awarded the Best Poster Prize at this year’s FSHD International Research Congress. Here he… Read More »
Tips and tricks – The Stand Aid
Here’s a solution to a delicate problem: the Stand Aid PTA, or power-toilet assist. Several of our members have raved to us about this “life-changing invention” that restores independence and… Read More »