By Tiffany Zimmerman, Deltona, Florida I don’t think any of my work as an artist really focuses on my having FSHD. I do feel, however, that my art and creativity… Read More »
Art lets me grow
Legendary festival to support FSHD Society
A few years ago, James Partridge, a long-time FSHD Society member, decided to re-boot his career and pursue his passion for the blues. His home city of Ann Arbor, Michigan,… Read More »
Losmapimod clinical trial key information has been posted
UPDATED 8/9/19 Fulcrum Therapeutics has posted on clinicaltrials.gov information about its upcoming clinical trial of losmapimod. The trial is NOT YET RECRUITING volunteers. People can monitor the clinicaltrials.gov site regularly… Read More »
International FSHD Patient Advocacy Summit
Marseille meeting convenes delegates from 11 nations BY SHEILA HAWKINS, TRUSTEE, MUSCULAR DYSTROPHY UK FSH muscular dystrophy affects people of every nation and ethnicity, and the effort to develop treatments… Read More »
2019 FSHD International Research Congress Highlights
At the 26th annual FSHD International Research Congress (IRC) this June 19-20, held in a 19th-century palace overlooking the harbor of Marseille, the 180 attendees were treated to a spectacular… Read More »