by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully,… Read More »
Surgery fixed my eye problems
Fulcrum Acquires Global Rights to a Potential Disease-Modifying Therapy for FSHD
From Fulcrum Therapeutics press release. Fulcrum plans to launch a Phase 2b clinical trial in FSHD in mid-2019 CAMBRIDGE, Mass., April 23, 2019 – Fulcrum Therapeutics, a biotechnology company focused… Read More »
$100,000 matching gift challenge!
The time to act is now If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your… Read More »
FSH Society Radio on Living, Loving, Caring, Sharing
Join us via Facebook Live on Wednesday, April 24, at 9:00 pm Central / 10:00 pm Eastern time (note change of time) for our conversation with Drs. Ora and Isaac Prilleltensky… Read More »
Danny Kurtzman designs for life
The headquarters of Ezekiel Clothing is tucked in a bland office park in Irvine, California, but inside it’s anything but bland, with its too-cool-for-school interior of concrete, charred timber, and… Read More »