by Ian Rys, Port St. John, Florida When I turned 50, I began to feel I was moving and walking differently. I won’t lie: That scared me. I’ve always tried… Read More »
My journey continues
Newly funded grants
Steps forward toward new treatments The FSH Society’s board of directors voted to approve $332,906 in funding for three grant applications submitted for the August 2018 cycle. The first project… Read More »
FSHD Advocate is out!
The latest issue of our flagship magazine, FSHD Advocate, has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a… Read More »
A slam poet’s take on living with FSHD
As with any aspect of the human condition, living with FSHD can inspire all forms of artistic expression. Cypriot Argyri Ioizou recently won his nation’s first-ever slam poetry competition. Congratulations!… Read More »
Tips and tricks: Nite Hood
Eye dryness during the night is a chronic complaint for those who can’t close their eyelids fully, as is often the case for people with FSH muscular dystrophy. One solution… Read More »