We are honored that you chose to support us. FSH muscular dystrophy, a debilitating disease affecting nearly a million men, women, and children worldwide, has long lacked any treatment, but… Read More »
Our annual report card [2018]
Swallowing and speech in FSH muscular dystrophy
Our recent webinar featured speech language pathologist Kiera Berggren, from the FSHD clinical research center at Virginia Commonwealth University. Berggren has a passion for understanding and treating issues with swallowing… Read More »
Playing the hand you’ve been dealt
By Landon Poindexter One thing I have come to learn in my eighteen-year life is that no matter how hard you try, there is no avoiding hardships that are sent… Read More »
Tips and tricks for managing eye dryness
One of our members went to dry eye clinic recently and they recommended using Glad Press-N Seal as an overnight eye mask for keeping eyes closed and moist. She has… Read More »
FSH Society Radio – Acupuncture for FSH muscular dystrophy
Join us via Facebook Live on Wednesday, February 27th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with Katelyn Michals, a national board-certified licensed acupuncturist… Read More »