Patients who volunteer for research are the keystone of drug development efforts. Without them, the entire edifice built by teams of biologists, chemists, doctors, and other PhDs and MDs, would… Read More »
“Building the house” for FSHD therapies
Freedom Through AFOs
by ROD FULMER, McDonough, Georgia Who wants to wear ankle braces? I wish I didn’t have to wear any, but because I need them, I’m glad I found carbon fiber braces… Read More »
Our Guide for Schools
The FSH Society’s Guide for Schools is available online for download and print here. Created by a team of national experts, this booklet provides information about FSHD and the impact… Read More »
The flu season is upon us. Should you get the vaccine?
FSHD patients may be concerned about the effect of injections on their muscles, and others worry about exposure to chemicals in vaccines, but FSHD medical experts agree that any potential… Read More »
Scooting around unconscious biases
by MEREDITH MADDRY, Atlanta, Georgia I have heard that to have an “executive presence” in business, one should stand tall, smile, and extend your arm for a firm handshake. Yet what… Read More »