by LEIGH REYNOLDS, Kansas City, Missouri When we began planning for the inaugural Walk & Rolls to Cure FSHD, a $105,000 fundraising goal felt ambitious. Then an incredible group of volunteer… Read More »
Inaugural Walk & Roll Campaign a Tremendous Success!
High-intensity exercise training in FSHD
by Amanda Hill If you or a loved one is affected by FSHD, or any muscular dystrophy for that matter, chances are that you’ve heard it’s best not to exercise,… Read More »
DUX4 vs. PAX7–Who’s the fairest one of all?
by Amanda Hill For several years, DUX4 has enjoyed center stage in the yet-unfolding story of facioscapulohumeral muscular dystrophy (FSHD). DUX4 was first identified in 19991, but only in the… Read More »
And the new ICD-10 code for FSHD is…
The new ICD-10 code for Facioscapulohumeral muscular dystrophy is G71.02. The International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) is a system used by physicians and other healthcare providers… Read More »
The newly redesigned Advocate is here!
We’re proud to announce that the first issue of the FSHD Advocate is available and headed your way! Excited? So are we! Check out some of the highlights of this… Read More »