A note to our families This morning, Fulcrum released top-line results of its phase 3 trial for Losmapimod. The results showed no difference between placebo and active ingredient groups. Therefore,… Read More »
A note to our families from CEO Mark Stone
Muscle regeneration research
A complementary approach for FSHD therapeutics by Justin Cohen, New Haven, Connecticut This is an exciting time for facioscapulohumeral muscular dystrophy (FSHD) patients, with many therapeutics entering clinical trials. Most… Read More »
Remembrance of Lilleen Walters
by Kathryn Wagner, MD PhD I lost my dear friend, Lilleen Walters to FSHD in August. Lilleen and I met approximately 20 years ago when she and her young son,… Read More »
Why put off getting hearing aids?
They’re now more affordable and available by Richard Holmes, Sandwich, Massachusetts If you’re straining to hear what people say, or find yourself cranking up the volume on your TV to… Read More »
It’s alive! It’s alive!
A space-age solution for eating soup by Amy Bekier, San Diego, California Hello, my fellow slurpy, sloppy FSHD superhero eaters! For many of us with FSHD, as our hands, wrists,… Read More »