Good Bad Things breaks barriers and earns accolades by Erin Saxon, FSHD Society In August, we shared exciting news about Good Bad Things, a film that promised to challenge perceptions… Read More »
FSHD Representation in Film Fest Favorite ‘Good Bad Things’
Honoring Rare Disease Day: The Power of Collaboration
Fulcrum and the FSHD Society Reflect on Partnership at Advocacy Event On February 28th, Fulcrum Therapeutics hosted a Rare Disease Day Advocacy Event at their headquarters in Cambridge, MA. This… Read More »
Every person’s effort takes us closer to the tipping point
Stories from our 2024 Volunteer Leadership Summit In early February, 75 of our Volunteer Leaders from across the US and Canada met in-person at the Chicago Airport Hilton or virtually… Read More »
Statins (cholesterol-lowering drugs) and muscular dystrophy
Weighing risks and benefits We are often asked about whether people with FSHD can safely take statins. Statins are the most widely prescribed drug in the world and are used… Read More »
From the Wayback Machine, 2010
Who hasn’t worried that when they clean out the attic, they’ll inadvertently send a precious heirloom to the trash heap? Sometimes a good Samaritan finds the treasure and returns it…. Read More »