Check out this audio from an interview with Sue Aumiller, director of our Columbus Ohio chapter, with Mark Blazor from Columbus’s top local station, 610-WTVN. Mark read the Columbus Dispatch’s… Read More »
Listen up! Columbus TV news features our Walk leader
For newly (and not so newly) diagnosed people
We have published a new e-brochure, “Not Alone,” by Kelly Mahon Hessler. Based on interviews with a wide range of FSH muscular dystrophy patients, parents, and partners, this e-brochure assures… Read More »
Kansas City FSHD Family Day registration now open
You can now register for the FSHD Family Day Conference in Kansas City, taking place on November 10. Registration is free but required so that we have accurate numbers of… Read More »
Help Wanted: UC Irvine study seeks volunteers
“I just finished participating in this study as their very first volunteer patient, visiting on the 14th and 21st of August 2018. It was very easy and straightforward.” – Bryan… Read More »
FSH Society Talk Radio: Marketer, mom, and advocate Taylor Quigg
Join us on September 26th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Taylor Quigg, a wife and mother of two who lives in the suburbs of… Read More »