Because if not us, then who? by Deborah Schwartz, New York City I was clinically diagnosed with FSHD two years before the FSH Society came into being. Mine is a spontaneous… Read More »
Why I made the FSH Society a beneficiary in my will
Walk & Roll to Cure FSHD is coming next month!
by Beth Johnston and Leigh Reynolds, FSH Society Our first nationally branded event, the Walk & Roll to Cure FSHD, will take place in September and October 2018. This new, signature… Read More »
An update on early-onset FSHD
A review of published studies to improve our understanding by Amanda Hill, Highlands Ranch, Colorado As many as 20 percent of patients with FSHD have an “infantile” or “early-onset” form, which… Read More »
Me and my cowboy boots
From the department of silver linings by Jeff Gibler, Humble, Texas When I was a kid we would come to the United States during the summer to visit my paternal grandparents… Read More »
The latest issue of the Watch is here
Click Here to read all the recent research and community updates! Highlights of this issue include: Reports from the International Research Congress & the Patient Connect Conference Profiles of our… Read More »