Contributor: Kathy Senecal, Cromwell, Connecticut As a wearer of a stance control brace for 3 years, I became aware that I have not yet met another individual with FSHD wearing… Read More »
Stance control braces
Find your voice through FSH Society radio
With 14 episodes of our monthly FSH Society Radio show now under our belt, we hope many of you are not just listening, but also considering how this medium can give… Read More »
FSH Society launches national chapter program. Are you in?
There is great power in community. When we come together, each bringing our own unique strengths and skills, we inspire each other to go farther and reach higher than we… Read More »
John Bach, MD, on noninvasive ventilatory support
John Bach, MD, of the UMDNJ New Jersey Medical School, is a leading authority on breathing issues that can arise in individuals with facioscapulohumeral muscular dystrophy and other neuromuscular conditions…. Read More »
2018 FSHD Connect videos!
Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10, 2018. The conference gathered together 400 patients, family members, researchers, physicians, and health experts for… Read More »