By June Kinoshita, FSHD Society The pharmaceutical industry is showing a growing interest in developing therapies for facioscapulohumeral muscular dystrophy (FSHD), a rare genetic disorder affecting an estimated one million… Read More »
Big pharmas show growing interest in FSHD
A personal mission to advance research
Amanda Hill, a Colorado native, lives with her husband, Justin, and their two dogs in the Denver area. Together, they share a love for travel, great food, and discovering new… Read More »
Science with a heart
Lucienne Ronco’s journey is a testament to the power of curiosity and compassion. With roots in the Pocono Mountains of Pennsylvania, she embarked on a path that would lead her… Read More »
The Global FSHD Innovation Hub
Accelerating clinical trials and access to treatments by Lawrence Korngut, MD, and Blaine Penny, Calgary, Canada This is a very exciting time for the FSHD community, as new therapeutics are… Read More »
Getting treatments to young patients
MOVE Peds is essential to pave the way by Natalie Katz, MD, and Katy de Valle, research physical therapist More than 50% of people with FSHD develop symptoms as children… Read More »