by Jamshid Arjomand, Chief Science Officer With a dozen or more potential FSHD therapies in the drug development pipeline, why is the FSHD Society continuing to invest substantial funds− a… Read More »
Extraordinary Measures – Many shots on goal
Extraordinary measures – An FSHD Society for everyone
by June Kinoshita, FSHD Society Our mission at the FSHD Society is to find treatments and a cure for FSHD—and then make sure everyone in the world who needs it… Read More »
His father’s FSHD inspired scientist to make a breakthrough
Is this the ticket to gene therapy for muscle diseases? by June Kinoshita, Director of Research and Patient Engagement A lot of emails cross my desk every day, but one… Read More »
A standing army for FSHD
You can make a difference! When you first found our website, you may have signed up to receive our emails, and you may, understandably, have thought you were all set…. Read More »
AMRA Medical cites FSHD Society’s support of its MRI study
Hats off to AMRA Medical and Avidity Biosciences for adding magnetic resonance imaging (MRI) to the landmark MOVE study. The FSHD Society helped to build and expand the clinical trial… Read More »