You can make a difference! When you first found our website, you may have signed up to receive our emails, and you may, understandably, have thought you were all set…. Read More »
A standing army for FSHD
AMRA Medical cites FSHD Society’s support of its MRI study
Hats off to AMRA Medical and Avidity Biosciences for adding magnetic resonance imaging (MRI) to the landmark MOVE study. The FSHD Society helped to build and expand the clinical trial… Read More »
Record Year in Grant Funding
$2 million allocated for 15 projects by Jamshid Arjomand, PhD, FSHD Society Following a lull imposed by the global pandemic, the FSHD Society’s support for research grants has come back… Read More »
UCLA continues commitment to find treatments for FSHD with M.O.V.E. Study
This is a sponsored blog post by UCLA Health as part of its 2021 Los Angeles Walk & Roll Platinum Sponsorship Partnership. If you ask a patient or their family… Read More »
Sleep and pain, the hidden connection
In this presentation, Heloise Hoffmann shares her study focusing on understanding the relationship between FSHD, sleep, and pain. Sleep is essential, but it could be affected by FSHD. To… Read More »