Yesterday, the FSH Society convened a landmark meeting at the Tommy Douglas Conference Center, a stone’s throw from the headquarters of the Food and Drug Administration (FDA). Several FDA regulators… Read More »
Industry collaborative workshop on FSHD clinical trial readiness
Giving a piece of me for research
by HILARY A. C. HOOVER, Ocala, Florida I tested positive for the FSHD gene and am currently asymptomatic. Due to my status, I was asked to donate muscle tissue via open… Read More »
FSHD Society names Jamshid Arjomand, PhD, Chief Science Officer
The FSHD Society today announced that Jamshid Arjomand, PhD, has joined the organization as its Chief Science Officer. The Society is the world’s largest research-focused patient advocacy organization for facioscapulohumeral… Read More »
New England chapter meeting talks
The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted… Read More »
DUX4 structure unveiled
MINNEAPOLIS, MN- December 12, 2018 – New research by University of Minnesota scientists has revealed the three-dimensional structure of the DUX4 protein, which is responsible for the disease, facioscapulohumeral muscular… Read More »