by Amanda Hill If you or a loved one is affected by FSHD, or any muscular dystrophy for that matter, chances are that you’ve heard it’s best not to exercise,… Read More »
High-intensity exercise training in FSHD
DUX4 vs. PAX7–Who’s the fairest one of all?
by Amanda Hill For several years, DUX4 has enjoyed center stage in the yet-unfolding story of facioscapulohumeral muscular dystrophy (FSHD). DUX4 was first identified in 19991, but only in the… Read More »
FSH Society latest grant awards
By Daniel Paul Perez & June Kinoshita One of the blue-sky dreams for those of us working toward treatments for FSH muscular dystrophy is regenerative therapy—treatments to generate healthy muscles… Read More »
UMass study seeks volunteers
Physicians and researchers at the University of Massachusetts Medical School (UMMS) seek individuals with facioscapulohumeral muscular dystrophy (FSHD) to participate in an FSHD Biomarker Study. This will be conducted by… Read More »
Help Wanted: UC Irvine study seeks volunteers
“I just finished participating in this study as their very first volunteer patient, visiting on the 14th and 21st of August 2018. It was very easy and straightforward.” – Bryan… Read More »