One community – united effort – cure for all by Ally Roets, Tucson, Arizona A few years ago, as we started to hear about clinical trials for promising new drugs… Read More »
The children of FSHD – they exist, too
Engineering new muscles
Using nature’s scaffolding to coax cells to develop into muscle by Fred Thys, Weymouth, Massachusetts Neil Camarta, who has FSHD and founded the FSHD Canada Foundation, discovered that there is… Read More »
The FACT Alliance
Progress through collaboration by Jamshid Arjomand, PhD, Chief Science Officer As a fan of home improvement shows, I’m fascinated by the evolution of going from an idealized dream home or… Read More »
2023 International Research Congress summary
The journal Neuromuscular Disease has published a summary of the FSHD Society’s 2023 scientific conference held in Milan, Italy, this past June. The article was co-authored by Jamshid Arjomand, PhD,… Read More »
A holistic approach
What the FSHD Society can and must do for the community by June Kinoshita, FSHD Society The FSHD Society has been tightly focused on understanding FSHD and speeding up the… Read More »