Even without treatment, a diagnosis is therapeutic By Asifa Lalji (from her article in the FSH Watch Newsletter Spring/Summer 2015) When the Canadian provincial government of British Columbia decided it… Read More »
Why seek genetic testing for Facioscapulohumeral muscular dystrophy?
International facioscapulohumeral muscular dystrophy research conference in Boston
The FSH Society’s 2015 Facioscapulohumeral Muscular Dystrophy (FSHD) International Research Consortium and Planning Meeting will convene in Boston this year, on October 5-6. This meeting is the largest annual forum… Read More »
Recently published research
The publications listed below were supported by the FSH Society in the form of research fellowships and travel grants. We thank our many donors for providing the funding to advance… Read More »
First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology
From PRWeb Contact Information: Rosie Hale 617-779-1893 FSHSociety@shiftcomm.com Guideline is a landmark step forward for the diagnosis; comes as a result of FSH Society’s advocacy efforts over the past 20… Read More »
FSH Society Awards New Round of Research Grants to Support Critical Research on FSH Muscular Dystrophy
From PRWeb BOSTON, MA (PRWEB) JULY 24, 2015. The FSH Society, the Massachusetts-based charity that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy (FSHD), announced a… Read More »