We have been notified that researchers at the UC Davis Medical School are seeking FSHD patients to volunteer for a study. Read here about why participating in research is so… Read More »
UC Davis study is seeking volunteers
aTyr Announces First FSHD Clinical Trial of Resolaris™
San Diego-based biotech company aTyr Pharma announced today its first clinical trial in FSHD patients of its investigational new drug Resolaris™. The Phase 1b/2 study is a double-blind, placebo-controlled, multiple ascending dose… Read More »
A recap of 2014 research highlights
Check out our press release “A Look Back: FSHD Research Advances in 2014,” which summarizes some important advances in our understanding of medical as well as fundamental scientific issues. These include… Read More »
New biotech targets FSHD
Three entrepreneurs who have been affected personally by FSHD announced at this year’s FSHD Champions meeting that they have established a biotech dedicated to developing a treatment for FSHD. The new… Read More »
FSHD researchers gather in San Diego
The 2014 FSH Society FSHD International Research Consortium workshop is being held as an ancillary meeting on Friday and Saturday, October 17-18, 2014, prior to the opening of the American Society for Human… Read More »