The FSHD Society announced today that Max Adler, an actor best known for his roles on the hit series “Glee,” available for streaming on Netflix, and “Switched at Birth”, is… Read More »
Glee star is Walk & Roll national ambassador
2020 Young Investigator Awards
The FSHD Society is proud to announce that three highly deserving individuals are each being given a Young Investigator Award for 2020. This award recognizes junior researchers who show exceptional… Read More »
FSHD Clinical Trial Research Network expands to four new sites
The FSHD Society announced today that it has awarded $300,000 a year to expand the Facioscapulohumeral Muscular Dystrophy Clinical Trial Research Network (FSHD CTRN), with consideration of follow-on funding of $300,000 a… Read More »
Help us grow our network
The future is in YOUR hands The FSHD community has an urgent challenge and a powerful opportunity to help support research studies and upcoming clinical trials. Currently, there are nearly… Read More »
Nationwide Virtual Walk & Roll for FSH Muscular Dystrophy
The FSHD Society, the world’s largest research-focused patient advocacy organization for facioscapulohumeral muscular dystrophy (FSHD), announced that it will hold a slew of virtual Walk & Roll to Cure FSHD… Read More »