We are so excited and proud to see Tim Hollenback, host of the FSHD Society talk radio show, featured by Milwaukee’s 10thirtysix news program last night. In this segment, we… Read More »
Tim Hollenback on Milwaukee’s PBS [VIDEO]
FSHD Society signs agreement to expand CTRN
From PRWeb The FSHD Society announced today that it has signed a memorandum of understanding to enter into a three-year agreement to enable the expansion of the international facioscapulohumeral muscular dystrophy… Read More »
What’s in a name?
We’re now the FSHD Society Discerning readers will notice that we have changed our name and logo to align with how the rest of the world abbreviates facioscapulohumeral muscular dystrophy…. Read More »
Hot off the press: FSHD Advocate
The newest issue of FSHD Advocate has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a digital-only reader, here… Read More »
International FSHD Patient Advocacy Summit
Marseille meeting convenes delegates from 11 nations BY SHEILA HAWKINS, TRUSTEE, MUSCULAR DYSTROPHY UK FSH muscular dystrophy affects people of every nation and ethnicity, and the effort to develop treatments… Read More »