We’re now the FSHD Society Discerning readers will notice that we have changed our name and logo to align with how the rest of the world abbreviates facioscapulohumeral muscular dystrophy…. Read More »
What’s in a name?
Hot off the press: FSHD Advocate
The newest issue of FSHD Advocate has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a digital-only reader, here… Read More »
International FSHD Patient Advocacy Summit
Marseille meeting convenes delegates from 11 nations BY SHEILA HAWKINS, TRUSTEE, MUSCULAR DYSTROPHY UK FSH muscular dystrophy affects people of every nation and ethnicity, and the effort to develop treatments… Read More »
2019 FSHD International Research Congress Highlights
At the 26th annual FSHD International Research Congress (IRC) this June 19-20, held in a 19th-century palace overlooking the harbor of Marseille, the 180 attendees were treated to a spectacular… Read More »
World FSHD Day 2019 highlights
World FSHD Day was a HUGE Success! Thank you to all of you who hosted events and participated! Here are a few highlights: The Tampa Chapter and George Pollock Raced Across America with… Read More »