At its December meeting, the FSH Society’s Board of Directors elected Marie Morrell, JD, as its newest board member. Marie has worked in the aerospace and defense industry since 2003… Read More »
Marie Morrell joins FSH Society Board of Directors
The 11-step challenge
At the close of 2018, two adventurers accomplished what heretofore was thought impossible – they each traversed Antarctica solo, unaided, on foot. One of these intrepid souls, Louis Rudd, when… Read More »
Industry collaborative workshop on FSHD clinical trial readiness
Yesterday, the FSH Society convened a landmark meeting at the Tommy Douglas Conference Center, a stone’s throw from the headquarters of the Food and Drug Administration (FDA). Several FDA regulators… Read More »
Team FSHD Skyland Trail will compete in the 2019 Race Across America
From PRWeb The FSHD Society and Skyland Trail today announce that they are jointly entering an eight-person team in the 2019 Race Across America (RAAM) to raise funds for their respective causes. The two… Read More »
Our annual report card [2018]
We are honored that you chose to support us. FSH muscular dystrophy, a debilitating disease affecting nearly a million men, women, and children worldwide, has long lacked any treatment, but… Read More »