A note to our families This morning, Fulcrum released top-line results of its phase 3 trial for Losmapimod. The results showed no difference between placebo and active ingredient groups. Therefore,… Read More »
A note to our families from CEO Mark Stone
Remembrance of Lilleen Walters
by Kathryn Wagner, MD PhD I lost my dear friend, Lilleen Walters to FSHD in August. Lilleen and I met approximately 20 years ago when she and her young son,… Read More »
FSHD Cycling Team to ride again
George Pollock is tackling the Triple Bypass this July Click HERE to donate to George’s ride Audacious in its ambition and breathtaking in its logical execution, Team FSHD Cycling first… Read More »
David Glass elected to the National Academy of Sciences
Co-chair of the Society’s Scientific Advisory Board receives one of highest honors in science The FSHD Society is proud to share the news that David J. Glass, MD, co-chair of… Read More »
Calgary 360 slides
Here are the slides from the Calgary FSHD 360 meeting on March 16, 2024. Welcome! What is a 360? What is the CTRN? Beth Johnston, FSHD Society, and Neil Camarta,… Read More »