Last weekend, January 25-27, 2019, a force descended upon the Chicago O’Hare airport. And we’re not talking about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened… Read More »
Our inaugural volunteer leadership summit
FSHD Society names Jamshid Arjomand, PhD, Chief Science Officer
The FSHD Society today announced that Jamshid Arjomand, PhD, has joined the organization as its Chief Science Officer. The Society is the world’s largest research-focused patient advocacy organization for facioscapulohumeral… Read More »
Peace Joy Gratitude
You’ve made a difference and we are grateful As the year draws to a close, all of us at the FSH Society wish you Happy Holidays and thank you for… Read More »
An urgent call to action
This year-end webinar by FSHD Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the… Read More »
