Today, The FSH Society, the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), announced the launch of its national chapter development program to provide the opportunity to fund more… Read More »
FSH Society launches national chapter program
Walk & Roll to Cure FSHD is coming next month!
by Beth Johnston and Leigh Reynolds, FSH Society Our first nationally branded event, the Walk & Roll to Cure FSHD, will take place in September and October 2018. This new, signature… Read More »
The latest issue of the Watch is here
Click Here to read all the recent research and community updates! Highlights of this issue include: Reports from the International Research Congress & the Patient Connect Conference Profiles of our… Read More »
2018 FSHD Connect Conference
Informative and life changing by Ian Rys, Port St. John, Florida As a first-timer, I was very excited to attend the 2018 FSHD Connect Conference held in Las Vegas, Nevada, this… Read More »
The 2018 FSHD International Research Congress
The field has made astonishingly fast progress by Charis Himeda, PhD, University of Nevada, Reno Nearly 150 researchers, clinicians, patients, and industry partners convened at the FSH Society’s 2018 International Research… Read More »