When the FSH Society made its initial grant award in 2016 to help establish the nationwide FSHD Clinical Trial Research Network (CTRN), we expected the network would be able to… Read More »
$1.2 Million MDA grant awarded to FSHD Clinical Trial Research Network
Our new FSHD 101 video
Our new video explains the basic facts about facioscapulohumeral muscular dystrophy–the symptoms, how it affects those who have it, how it is inherited, and how many people are affected. Watch… Read More »
Talk Radio: The FSH Society launches national chapter program
Join us on July 25th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Beth Johnston and Leigh Reynolds, the dynamic duo who are spearheading the… Read More »
Find your voice through FSH Society radio
With 14 episodes of our monthly FSH Society Radio show now under our belt, we hope many of you are not just listening, but also considering how this medium can give… Read More »
FSH Society launches national chapter program. Are you in?
There is great power in community. When we come together, each bringing our own unique strengths and skills, we inspire each other to go farther and reach higher than we… Read More »