There is great power in community. When we come together, each bringing our own unique strengths and skills, we inspire each other to go farther and reach higher than we… Read More »
FSH Society launches national chapter program. Are you in?
2018 FSHD Connect videos!
Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10, 2018. The conference gathered together 400 patients, family members, researchers, physicians, and health experts for… Read More »
World FSHD Day backstory
Italian brothers’ ordeal sparks a global movement As we approach our third annual World FSHD Day this June 20th, and the international FSHD community plans to flood their social channels… Read More »
FSH Society Announces Third Annual World FSHD Day, Taking Place on June 20, 2018
https://www.youtube.com/watch?v=2GOgTBvu-GY The FSH Society is excited to celebrate the Third Annual World FSHD Day and join the global effort to raise awareness to FSHD on June 20, 2018. To build… Read More »
Walk Pioneers Lead the Way!
This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast. These Volunteer Leaders… Read More »